As President Donald Trump talked tax reform on Capitol HillTuesday, Arkansas patient advocate Andrea Taylor was also meetingwith lawmakers and asking them to save a corporate tax credit forrare disease drug companies.
Taking the credit away, Taylor said, “eliminates the possibilityfor my child to have a bright and happy future.”
Taylor, whose 9-year-old son, Aiden, has a rare connectivetissue disorder, spoke as part of a small rally thrown togetherthis week by the National Organization for Rare Disorders (NORD) —the nation’s largest advocacy group for patients with rarediseases.
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