Money symbol and data The market for de-identified health care data is growing rapidly, but as consumers have become more willing to share data, they also want to have more control over how their data is used. (Image: Shutterstock)

What’s in your personal health data? Even though it may be personal, it may have considerable value. And today this information is often put up for sale—in non-identifiable form—leading to the question: should patients get a cut of whatever money is made from the sale of their health information?

Oregon lawmakers have proposed a bill that would do just that: require that patients to give their authorization to any entity that sells their health data. The legislation further stipulates that they should have the right to be compensated as part of that sale.

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